Par-Con 2021 - Technology, apps and devices
Technology can be of huge benefit to both research and healthcare professionals, and provides opportunities for people living with Parkinson’s to better understand their condition and take control. In this session we’ll hear about how people with Parkinson’s are shaping and steering the development of technology to better support them in their daily lives.
We’ll be joined by Dr Rosie Morris from Northumbria University, who is working to develop an app alongside a patient advisory group. Two members of this group, Elaine Webster and Gerry Standerline, will share their experiences of being involved as co-investigators; and Dr Natasha Ratcliffe, Research Involvement Manager at Parkinson’s UK, will highlight the support Parkinson's UK can provide to researchers and people affected by Parkinson’s who wish to work together to shape and conduct research. Finally, Jeff Gould, who leads the Parkinson’s UK Apps and Devices Panel, will look at what technology is already available and where the future may take us.
Dr ROSIE MORRIS
Physiotherapist and Senior Lecturer, Sport, Exercise and Rehabilitation, Northumbria University
@Rosiemo24
Dr Morris is a Physiotherapist and researcher who specialises in Parkinson’s. Dr Morris is based at Northumbria University and is an honorary clinic Physiotherapist at Northumbria Healthcare Trust. Dr Morris has research interests in observing mobility (gait, balance, and falls) and how it relates to cognitive function in people with Parkinson’s. Dr Morris’s research aims to improve rehabilitation by understanding the mechanisms behind
mobility and cognition as well as using novel technology to support rehabilitation.
GERRY STANDERLINE
Co-Investigator with Dr Rosie Morris and Involvement Volunteer
Gerry is 67 years old and was diagnosed with Parkinson’s 6 years ago. He has 3 adult offspring and 4 grandchildren, and has been married to Jane for 38 years. He has a BA in Politics from Leicester University and an MA in War Studies from London University.
Gerry retired from his position of IT Manager when he was 59. He started in the computer industry in the early 1980s as a trainee programmer and worked for Next and Leeds City Council for most of his career. He managed teams of up to 100 people and led a number of large projects, including the Year 2000.
ELAINE WEBSTER
Co-Investigator with Dr Rosie Morris and Involvement Volunteer
Elaine worked in a range of education, training and outreach roles before retirement. She currently does voluntary work and is interested in the arts and culture.
Dr NATASHA RATCLIFFE
Research Involvement Manager, Parkinson’s UK
@_nratcliffe
I’ve been working at Parkinson’s UK for 4 and a half years. In my role as Research Involvement Manager I support researchers and people affected by Parkinson’s to work together to improve research. People living with Parkinson’s day-to-day are experts in the
condition. It is so important that there are opportunities for people to share this expertise with researchers. People living with Parkinson’s should also be involved in deciding what research is done and how it is designed to ensure that it meets the needs of the Parkinson’s community.
In my role I support our network of patient and public involvement volunteers (‘PPI’ volunteers for short) to get involved in research across all stages — from setting priorities to helping researchers design studies and share their findings. I help researchers plan involvement activities and bring people together to talk about research. I am also interested in learning about different ways of doing patient and public involvement. It is important that
involvement is meaningful and has an impact for research and everyone involved.
JEFF GOULD
Associate Director of Transformation & Culture, Parkinson’s UK
Jeff has been with Parkinson’s UK since January 2021 bringing almost 20 years of experience working in innovation for not-for-profit organisations.
Formerly Head of Innovation at the RNLI, one of the UK’s biggest charities, he defined and led the role of innovation across lifesaving interventions, new technology and a diverse portfolio of funding including new commercial models. Jeff has also run his own strategy and innovation consultancy; worked for an innovation agency that promoted the arts as a solution to business challenges; and undertaken service design for a national mental illness charity.
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